Guide for NICU families

NICU discharge checklist: getting ready to bring baby home

When your baby’s team starts talking about going home, it can feel exciting and overwhelming at the same time. It did for us. This checklist breaks the run-up to discharge into small, doable pieces, with questions to bring to your baby’s team along the way.

A note from our family: this is general information from one NICU family to another, not medical advice. Every baby and every unit is different, so please ask your baby’s care team about anything specific to your baby.

Ready to go home? Ask your team

Every NICU has its own discharge criteria, and every baby's path is different. The question that helped us most: "What does my baby need to be able to do before going home?" Ask it early, and ask again every week or so, since the answer can change.

A few weeks before discharge

The car seat

Ask your team what your baby needs for the ride home. A few things to ask about and plan for:

What to learn before you go

Ask your nurses to show you, then to watch you do it. Doing it yourself once or twice with support builds confidence quickly.

Paperwork to get before you leave

Keep it all in one folder. Your pediatrician will want to see it.

Follow-up appointments

Our NICU ALUM had more appointments than we expected. Before discharge, ask:

Put every appointment in your phone calendar before you leave the unit.

Medicines and supplies

Getting home ready

Your baby may have slept differently in the NICU while on monitors. Before you leave, ask your team exactly how and where your baby should sleep at home, and write it down.

Visitors, germs, and cold and flu season

We were nervous about germs once we got home. Ask your team what they recommend for your baby, including:

It's okay to tell family, "We're keeping visits small for now." People who love you will understand.

Who to call, and when

This is one of the most important questions to ask before you leave. Ask the team to tell you, specifically for your baby:

Write the answers down and keep them somewhere everyone in the house can see.

Discharge day

The first week home

Many parents find the first nights home harder than they expected. The monitors are gone and it's just you. That's a common feeling. Keep your list of who to call close, sleep when you can, and say yes to the people who offer meals and errands. You learned your baby in the NICU. You'll learn them at home, too.

If you're earlier in the stay, our questions to ask NICU nurses and doctors can help you start planning now.